Suffer from the chronic form of CH and not much to add other than my sympathies
Hardest part is getting diagnosed correctly, took me nearly two years of describing the symptoms and struck lucky with a locum GP who got it straight away. Had the MRI and all ok, then off to see the neurologist who seemed sort of glad to actually have a CH sufferer rather than the usual Migraine
Tried all sorts of drugs from Gabapentin to Lithium, hate the side effects and just use Sumitriptan as an abortive, injected form is the quickest acting followed by the nasal spray and then tablets. Also have a letter from the doctor that i can nip in the hospital for o2 if needed. If it gets really bad I have a five day course of 60mg of steroids a day which seems to break it up .
Strangely it affects me from about Sunday to Wednesday and then usually eases off again, no idea why or why I should start sipping water during the attacks. Had it this afternoon, but knew it was coming and got in quick with the meds
Consultant has agreed to leave me to my own devices and sure he thinks i'm a bit mad, bad enough having the CH without feeling out of it the rest of the time
My particular triggers seems to be high temperatures and strong scents like perfume or fumes, sure there are other things too
Hope it eases up for you and try not to let it get you down too much although i know its hard. Would be nice to be able to lie down during the attacks, but i always get ultra restless and end up pacing about like a caged lion
Don't let it bother you when someone says "I know I get bad headaches"
One Of The Most Painful Conditions Known To Man/or Woman..!
in Diary of a 'Madman'
A blog by NL in Archive
Posted
Hardest part is getting diagnosed correctly, took me nearly two years of describing the symptoms and struck lucky with a locum GP who got it straight away. Had the MRI and all ok, then off to see the neurologist who seemed sort of glad to actually have a CH sufferer rather than the usual Migraine
Tried all sorts of drugs from Gabapentin to Lithium, hate the side effects and just use Sumitriptan as an abortive, injected form is the quickest acting followed by the nasal spray and then tablets. Also have a letter from the doctor that i can nip in the hospital for o2 if needed. If it gets really bad I have a five day course of 60mg of steroids a day which seems to break it up .
Strangely it affects me from about Sunday to Wednesday and then usually eases off again, no idea why or why I should start sipping water during the attacks. Had it this afternoon, but knew it was coming and got in quick with the meds
Consultant has agreed to leave me to my own devices and sure he thinks i'm a bit mad, bad enough having the CH without feeling out of it the rest of the time
My particular triggers seems to be high temperatures and strong scents like perfume or fumes, sure there are other things too
Hope it eases up for you and try not to let it get you down too much although i know its hard. Would be nice to be able to lie down during the attacks, but i always get ultra restless and end up pacing about like a caged lion
Don't let it bother you when someone says "I know I get bad headaches"